Amy Silverstein, a celebrated author whose two memoirs, together with “Sick Lady,” from 2007, recounted her grueling but joyous odyssey via a life that required two coronary heart transplants, died on Might 5. She was 59.
Her husband, Scott Silverstein, confirmed her demise however didn’t say the place she died. The trigger was most cancers, which Ms. Silverstein had attributed to many years of post-transplant medicines.
Hers was a demise foretold — by Ms. Silverstein herself — in an Opinion essay for The New York Occasions that was revealed on April 18.
“Right now, I’ll clarify to my wholesome transplanted coronary heart why, in what could also be a matter of days or even weeks at greatest, she — effectively, we — will die,” Ms. Silverstein wrote. Recounting these ideas, which arose sooner or later on her common vigorous jog, she continued: “I slide my hand throughout my chest and converse aloud, palm to my coronary heart’s crisp beating. ‘I’m so sorry, candy lady.’ She shouldn’t be used to listening to me this manner, exterior my head, past the physique we share.”
By that time, the small print of her life with successive hearts that weren’t her personal (each got here from 13-year-old ladies) had been acquainted to legions of admirers via her many journal articles and tv appearances, in addition to her two books, together with “My Glory Was I Had Such Pals,” from 2017.
Every transplant — the primary was in 1988, when she was 24 and a second-year regulation pupil at New York College — gave her a brand new lease on life, as Ms. Silverstein usually recounted with deep gratitude. However by no means did her life return to what it was.
“Individuals don’t acknowledge that it’s arduous as a result of I’m not toting round an oxygen tank, and I look like advantageous,” she stated in a 2007 interview with the journal Marie Claire. “I type of reside a disguised life. After I stand up from the desk after a protracted dinner with associates, they simply stroll to the door. I’m strolling, and my coronary heart is saying, ‘What are you doing?’ Most individuals take with no consideration that while you stand, your coronary heart quickens instantly. Mine doesn’t and I get a sense of ‘mistaken’ in my physique each time.”
Amy Jill Shorin was born in Queens on June 3, 1963, the youthful of two daughters of Arthur T. Shorin, who was chief government of Topps, the sports activities playing cards and collectibles firm, and Arlene (Fein) Shorin. Amy, whose dad and mom later divorced, grew up in Nice Neck, N.Y., on Lengthy Island.
A member of the Phi Beta Kappa honor society, she graduated from New York College in 1985 with a bachelor’s diploma in journalism earlier than deciding on a regulation profession.
In her first yr in regulation college, she started experiencing mysterious signs, together with tightness in her chest, digestive points and fainting spells. She wrote in “Sick Lady” that she would “marvel what number of different younger girls had ever stared into a rest room bowl stuffed with their very own blood-streaked vomit, flushed it down, and dashed off to a two-hour seminar in constitutional regulation.”
A yr later, she was identified with congestive coronary heart failure. “The heaviness in my chest turned out to be due to not poor digestion, as I’d thought, however relatively to a grossly enlarged coronary heart that was actually bursting out of me,” she wrote.
As her situation deteriorated, Ms. Silverstein rose to the highest of the ready listing for a donor coronary heart, which she obtained at Columbia-Presbyterian hospital in New York. It was solely as she recovered from the operation that she started to be taught the worth of coronary salvation.
“With the medicines that she took and the repeated infections, she felt dangerous sooner or later nearly each single day,” Mr. Silverstein stated in a telephone interview. The highly effective medicines used to forestall her immune system from rejecting the donor coronary heart as a international object had numerous unintended effects, he stated, including, “She would carry round a bag routinely in case she needed to throw up.”
Ms. Silverstein endured remedy for repeated infections, a number of rounds of pores and skin most cancers and a wide range of different situations regarding a weakened immune system, her husband stated. The couple discovered themselves settling in for interminable waits in New York Metropolis hospital emergency rooms to take care of one complication or one other on a month-to-month foundation.
To examine for indicators of rejection, she needed to endure frequent coronary heart biopsies by which medical doctors “run a catheter down via your blood vessels and pluck items of your coronary heart out,” Mr. Silverstein stated. “She had over 90 of them.”
After “Sick Lady” was revealed, Ms. Silverstein obtained reams of fan letters from different transplant recipients, hailing her for her braveness in bringing to gentle the odd mixture of pleasure and distress that may accompany life with a brand new organ — what she known as the “gratitude paradox.”
She additionally attracted hate mail as a vocal critic of the well being care business. “Organ transplantation is mired in stagnant science and antiquated, imprecise drugs that fails sufferers and organ donors,” she wrote in her latest Occasions essay, including that the each day use of transplant medication over years or many years may cause a bunch of different life-threatening situations, together with diabetes, uncontrollable hypertension, kidney injury and most cancers.
Regardless of that destabilizing routine, Ms. Silverstein maintained a vigorous life, returning to complete regulation college after her first transplant, then practising briefly earlier than abandoning the career to boost a son, Casey, and, finally, to jot down.
Amid a lifetime of cautious regimentation, together with common and intense train and adherence to a strict weight-reduction plan, avoiding even the smallest pat of butter or sip of alcohol, she took up the guitar and songwriting. As soon as, within the late Nineties, she appeared as a solo act on the Backside Line nightclub in Greenwich Village.
Along with her husband, Ms. Silverstein is survived by her son in addition to her father and stepmother, Beverly Shorin. Her sister Jodie Hirsch died in 2020.
When her first donor coronary heart succumbed to vasculopathy — vascular lesions that may be brought on by some medicines — she underwent a second transplant surgical procedure in Los Angeles in 2014. Pals from across the nation maintained a spreadsheet to schedule their visits successively over the course of her practically three-month hospital keep “so she by no means needed to spend an evening alone within the hospital,” her husband stated.
That have grew to become the idea of “My Glory Was I Had Such Pals,” an adaptation of which is presently in improvement as a restricted collection by Warner Bros. TV and Unhealthy Robotic, the media firm run by the director and producer J.J. Abrams and his spouse, Katie McGrath, Mr. Silverstein stated.
However in a single sense, none of her human relationships had been fairly so intimate because the one she had with the roughly eight-ounce bundle of another person’s muscle beating beneath her rib cage.
“On our each day runs, when my ’70s yacht rock playlist propels every stride,” she wrote within the Occasions essay, “this coronary heart from a 13-year-old donor revolts in my physique with thumps of Oh puh-lease — and we giggle collectively, choosing up our tempo to sprinting.”